Resources for Parenting Children with Special Needs and the Medically Fragile

Links of Interest

Parent to Parent Resources

Parent to Parent provides support and information to parents of children with disabilities. Web site includes an excellent special needs database to search for providers and resources. Offers a nice roadmap to services and parent match features.
Georgia Children’s Network
The GA Children’s Network is an exciting disability list serv in GA bridging parents and grandparents of special needs children together with other parents, advocates, professionals, service providers and community organizations. Parents, advocates, special education attorneys and professionals are members of the list and will offer support and sound advice. Information shared: disability info, BCW (Babies Can’t Wait), SST, Spec. Ed. and Civil Rights (ADA, IDEIA, 504), appropriate medical care, and other such issues. This support is provided in an unbiased, safe forum moderated by parents of children with special needs.
National Institute of Health Library of Medicine
Both sites have a wealth of information on everything related to health and research.
Yahoo Groups
Parent forums can be an excellent resource of support and cutting edge information from other parents locally and around the world who understand what you’re going through. Search for a specific diagnosis and see if there is a group on your topic of interest.

Joyful Journey Mom

Helpful and encouraging information on topics such as:

-Receiving a devastating diagnosis.

-Ultimate List of Special Needs Resources

-Creating Your own Sensory Garden